A couple months ago, after returning from a vacation in Puerto Rico, I noticed a little mole on my left ankle. I didnโt even realize it was a mole at first, because I donโt really have any othersโI thought it was a shaving cut. But when it didnโt go away after a week or so, I took a closer look and realized it was a mole that was different colors and had irregular edges.
I made an appointment at a schmancy dermatology clinic that a friend had recommended. From the well-dressed peeps in the waiting room and displays of spendy products on hand, it seemed like most of the โpatientsโ were there for Botox. I found myself oddly comforted by the surrounding superficiality. Like my problem couldnโt be too serious if everyone around me was just waiting to get botulism injected into their faces.
I showed a pretty young doctor my mole. I had talked myself into believing that sheโd say I was being silly. She didnโt. She said it looked suspicious and had to be biopsied. She shaved it off, scanned my body for other suspicious moles (none), told me my bra was too tight(!), and that Iโd get results of the biopsy in ten days to two weeks.
Almost three weeks later, I got a call from a nurse at the clinic, saying I had to come in to discuss the results of the biopsy. I nervously laughed, โThat doesnโt sound good.โ
Crickets.
All business, the nurse asked if I could come in that same day. Everyone knows that when you need to come in to โdiscussโ your results, itโs bad. That same day? Very bad. I started shaking, crying, and was positive I was about to vomit. Even in that state, I changed into a nice outfit. Not out of any vanity, but because how could I have cancer if I was wearing my cute J. Crew denim pencil skirt?
My original doctor was out on vacation, so I met with a peppy fill-in doc. He sat me down and told me I have melanoma. He said that while yes, melanoma is the worst of all the different skin cancers (there are three types), he informed me that it is also highly treatable and it looked to be stage one or zero.
I asked if it was true that of all the cancers, melanoma was the most deadly. He said no, that was breast cancer. Oh. So itโs the second biggest killer. Gulp. Even with that news, he was unstintingly optimistic. I unsuccessfully tried to absorb a little of that optimism. He told me that theyโd already made an appointment for me to see an oncologistโa cancer specialistโthe following week.
A few days later, my original doctor called to check on me. Her take on my biopsy results were different than her cheerful colleagueโs. While she was optimistic, she shared that they didnโt actually know what stage my cancer was at. (Cancer goes from stage zero to four, with four being the most advanced.) So I wonโt know if I just need a simple surgery followed by quarterly skin scans, or something more involved until after I see the surgeon.
All I know for certain is that I have melanoma. Me, the girl who doesnโt leave the house without sunscreen of at least SPF 70. The woman who has a collection of sun hats and always walks in the shade. The ex-goth who spent most of her beach vacation swaddled in a muumuu, under an umbrella, wearing gallons of sunscreen and the biggest sunglasses she could find. I have melanoma.
Because Iโve been very open about my diagnosisโI even Twittered it, because the idea of announcing you have cancer via Twitter cracked me upโIโve fielded a lot of concerned phone calls and emails. During this trying time, I was reminded of how people dealt with my mom when she had cancer. So in the interest of being service-y, Iโve written a list of tips for dealing with someone whoโs caught the Big C (or any other life-threatening illness):
- Donโt dismiss my fears. My mom died of cancer when she was just 54, an uncle bought the farm at 40, and the rest of my family tree hasnโt fared much better. If I werenโt scared, Iโd be stupid. This is cancer, not a stomach flu.
- Donโt insist Iโll be fine. Believe me, nobody hopes Iโll be OK more than I do. But unless youโre my doctor (and even they donโt know yet), you canโt guarantee that. Itโs just irritating to hear, completely invalidates my feelings, and tells me you donโt want to hear what Iโm saying.
- If you have to panic, donโt do it around me. I was panic-stricken most of the time my mom was in the hospital and it bugged the crap out of her. Now I know how annoying I was. If you have to freak out, call a cancer-free friend or scream into a pillow.
- If I have to go into the hospital, youโd better visit me. And bring presents! And flowers! My momโs brother didnโt visit the entire time she was sick. Now my aunt (his other sister) is in a wheelchair, so he wonโt visit her because he โdoesnโt want to see her that way.โ I hope he still feels guilty over not getting to say goodbye to my mom, but I wouldnโt know since I havenโt spoken to him since my momโs funeral. Nobody likes hospitalsโleast of all the person who has to stay there. So nut up and get over there.
- Cancers come in all sizes. While hearing about Aunt Ednaโs golf-ball-sized tumor, which was removed and now sheโs fine, is great, donโt automatically assume this means Iโll be OK. Yes, I like hearing stories of people who lived through similar experiences, but Iโm still worried. On the flip side, please donโt tell me about people who had melanoma and died. Because if you do that, I will punch you.
- Let me talk about scary stuff. I know Iโm being self-absorbed, but this is a lot for me to handle. I have actually walked around my houseโaloneโrepeating aloud, โI have cancer.โ The more I talk about it, the easier it is for me to accept. I know that itโs hard to hear, but youโd be doing me a favor if you didnโt immediately change the subject every time it came up. Because you know how new parents talk about their babies 24/7? Think of cancer as my new, repulsive, unwanted little baby. Itโs all I can think about.ย And while youโre going to hear about it a lot, on the upside, at least I wonโt ask you to hold it.
- Donโt expect any bravery out of this lady. When I volunteered as an AIDS buddy, I had this idea that Iโd get someone like Harvey Fierstein, only dyingโa charming gay gentleman, facing death with dignity, intelligence and humor. Instead I got a despicable crackhead who informed me that heโd willfully infected scores of clients because โf**gots just want to f**k and get AIDS.โ Charming. In the next breath, he showed me a card from his mom who advised him that if he found God, heโd be cured, and then asked me to pray with him. Even if I believed it wouldโve helped him, I wouldโve passed. (I did call the chaplain because Iโm not completely heartless.) Though Iโm not a dirtbag like that guy, Iโm sure if I get as sick as he was, Iโll be just as scared, because Iโm pretty terrified now and I feel fine.
- Donโt give me unsolicited advice. I realize this is rich coming from someone whoโs actually written a list of tips you didnโt ask for, but Iโm talking more about the type of input that involves drinking wheatgrass, having a positive attitude, doing a โcleanse,โ or going to church. In my own dark little way, I am being positive, but thereโs no way in hell Iโm sticking a tube up my butt or drinking wheatgrass.
Original by Judy McGuire